In the last 24 hours we have moved from PICU to TCU to the general floor, where we usually are. Levi has had a very good day, except for a couple bouts of pain. He was able to go 6 hours between Morphine doses, so that is an improvement! He's still on humidified oxygen at 21%, which is room air.
Levi's G tube was a small mic-key button that fit snugly to the skin, was easy to use, and wasn't in much danger of popping out. Even if it had come out, I could quickly and easily replace it. The type of GJ tube they placed is a long catheter that splits into a Y, one end feeds into the stomach, and the other into the intestines. I'm definitely not a fan of this. Since it extends so far out, he won't be able to sleep on his tummy, which is what he prefers, and most of the time insists on. I was hoping that it could be replaced with a mic-key GJ tube before we go home, but that is not an option. The GI doctor wants us to wait until the tube fails before replacing it. When a GJ tube fails it has to be placed under sedation with x-ray. Not the best news, but since we are trying this temporarily I can be a big girl and get over my trepidation.
He had the ultrasound of his kidneys today to check for kidney stones, a common side effect of the Ketogenic Diet. There are no stones! Both kidneys and bladder are fine. Great news!
Right now he's resting well, listening to instrumental praise and worship (his favorite Pandora station), and ready to go to sleep. I hope tomorrow brings even more good news for Levi!
Levi's G tube was a small mic-key button that fit snugly to the skin, was easy to use, and wasn't in much danger of popping out. Even if it had come out, I could quickly and easily replace it. The type of GJ tube they placed is a long catheter that splits into a Y, one end feeds into the stomach, and the other into the intestines. I'm definitely not a fan of this. Since it extends so far out, he won't be able to sleep on his tummy, which is what he prefers, and most of the time insists on. I was hoping that it could be replaced with a mic-key GJ tube before we go home, but that is not an option. The GI doctor wants us to wait until the tube fails before replacing it. When a GJ tube fails it has to be placed under sedation with x-ray. Not the best news, but since we are trying this temporarily I can be a big girl and get over my trepidation.
He had the ultrasound of his kidneys today to check for kidney stones, a common side effect of the Ketogenic Diet. There are no stones! Both kidneys and bladder are fine. Great news!
Right now he's resting well, listening to instrumental praise and worship (his favorite Pandora station), and ready to go to sleep. I hope tomorrow brings even more good news for Levi!
No comments:
Post a Comment