Home But Not Home Free

After 24 days inpatient, we finally went home on the 4th.  Levi kept having inconsolable screaming fits, so we ended up back in the ER the night of the 5th.  I needed to know that all was well with his tummy, and thank God it was.  He also had an x-ray of his hip since he's had hip dysplasia, the doctor wanted to be sure that his tight muscles hadn't possibly dislocated it.  That was fine as well, and actually showed growth from last year, so that was a definite plus!  They wanted to give him a dose of Ativan, which other doctors have wanted to do, and I've been against it because last year it caused him 2 hours of continuous seizing, even though it is a seizure recovery drug.  We figured since we were already in ER we might as well try it.  It did  cause extra seizures, but it didn't last long.  We brought a prescription home to use instead of oxycodone.  It's possible that all this unhappiness is due to withdrawal from morphine/oxycodone (which metabolizes into morphine).   He fell asleep on the way home and slept all day.  Yesterday was a little better, he had some wakeful moments without crying.  Our neurologist increased the Baclofen dose in case the screaming is caused from tight muscles, due to cerebral palsy.

Today has been a nightmare of screaming again.  I really don't know what's causing it.  It could be anything from pain to anxiety to anger.  We gave him a dose of Ativan and he finally fell asleep, and it didn't cause any seizures.  We see the neurologist tomorrow, and will hopefully be able to figure some things out to help Levi.