Friday, July 1, 2011
Topamax to the Max
Finally talked to a doctor today now that we figured out my cell phone wasn't ringing and every call was going straight to voicemail. The doctor we usually deal with was out sick, and the consensus of two other doctors was not to go up on two meds at once (I understand where they are coming from, but the small increase in Keppra cut the ticking seizures down by more than half, and Topamax doesn't work on those seizures, and vice versa). They wanted to go up on Keppra, but we have done that before and it just didn't work, only made Levi super crabby. He's at 5 pills twice a day of Topamax, and they allowed my request to go up to 6 pills twice a day, but that is the final increase and we are at the maximum amount of Topamax that he should have. So if this doesn't work we will need to start a new med. My prayer is that this will work and STOP the seizures! They are much reduced, and seem to be even better since the shunt adjustment Wednesday. I believe this jump in Topamax will take them away! Please pray with us that this increase is what's needed to finally stop the Infantile Spasms! Hope everyone has a wonderful holiday weekend!