Still about the same :) He still has some fluctuations in blood pressure, fluids, etc but not as often or as extreme. They have added a 4th seizure medication. His blood pressure meds are being switched from the current line they are in to the picc line. He looks very comfy in his cute booties and soft blue blankie. I'm spending a lot of time in his room now that I don't have to worry that I'm causing his seizures. It just makes me feel better to be next to him.
I understand that your little boy needs you and you need him. I was the same way with Emily. I am glad there is lots of steps forward.
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