The big concern of the day is Levi's right hip. He has had his right leg pulled in close to his body for about 4-5 days. One of the doctors ordered Tylenol to be given every 4 hours. That seemed to help a little bit, but it still seems to bother him a bit. We talked to the doctors about some sort of pain management and they are going to get together with all the teams (clinical, neurological, and even physical therapist) to work on that, while they try to figure out why his leg is the way it is. Is it the PICC line, is it pain from something else, is it neurological? Everyone who comes in has a different opinion. Hopefully we can find out soon. They don't want to do an Xray because they do not want to expose him to more radiation than they have to. They have talked about doing an ultrasound to see whats going on with his hip. Other than that, they are continuing to wean him off his medicines. Seems like there is always a new issue, but we will not let that discourage us :)
The doctors are still talking about a discharge date of early next week. Hopefully we can get out of here Monday, but we will keep you all informed as we get the information.
Trust me Lynn I know about hip thing. They cant do a xray on Emily until she is 6 months old. I am still praying on Levi so he can come home real soon and you all can sleep in your own beds soon. Poor Brian he did that for months I dont know how he did it. Love to you all.
ReplyDeleteThanks Gina it so much helps to talk with soeone who has been there!
ReplyDeleteYour welcome I know how it feels. And I am always here for you if you need me. I am just a phone call away. These two babies are going to have so much to talk about when they get older.
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