Home....

We made it home yesterday afternoon. Things have been pretty hectic since we have been back. We got discharged from the hospital around 1pm. Right before we got discharged we talked a little bit to the neurological team. The doctor told us that he had a chance to look at Levi's ultrasound and it did not appear to him that Levi's ventricals where any larger than they have been. He said he did not see anything that he was concerned about. There was a small amount of confusion surrounding the discharge, but it was finally straightened out and we were out of there. Around 2:30pm we had the home nurses come out for their initial visit. We went over all the medicines to include the IV meds and how to do them. The took his vital signs, weighed him and were off. We went to church last night at 7pm to thank everyone for their prayers. Many got to see him and seemed amazed at how good he looked. We will probably keep him away from church for a while (through March) to minimize contact with the flu virus. All in all, it was a pretty hectic day.

This morning we got all his meds and feeding figured out on a daily schedule. Geez, this little guy has alot of meds still going in him. We get a 3 hr break twice through the day. Other than that, there is something to do for him almost every hour. Its going to be a long 3 weeks. LOL It is so nice to be home. Being home and doing it ALL on our own helps us realize how much we appreciated all the GREAT nurses at Cardinal Glennon hospital! They truely are the BEST!