Tuesday, January 15, 2013

A Good Few Days

Since we have gotten home from the hospital Levi has been doing pretty well.  His tummy no longer gurgles and grumbles all day since we stopped Miralax.  That is a huge improvement in itself!  The Milk of Magnesia has not yet worked, but we gave him the Dulcolax suppository on Sunday and he was covered in poop up to his neck.  The best part about this is that it did not hurt him at all!  Lately the enemas make him scream, and even though we know it's best that he have them, it's hard to make him go through that.  Unfortunately we can't give the Dulcolax more than once a week because it's habit forming.  Hopefully it will help wake up the colon and it will start working on its own.

Levi has been sleeping all night again!  Hallelejuh!  I can't remember when I've gotten this much sleep, or felt this good.  He is still so tired, and I'm not sure if that's just due to the hospital stay, teething, or what's going on.  He also is still having episodes where he throws his arms out (like a newborn's fear of falling) and cries.  I'm not sure what's causing this, either.  BUT he's been full of smiles today and a little more active.  He sat in his highchair and we played with a light up musical toy.  He paid  a lot of attention. 

Patrick, Mom, and I have decided to fast and pray for him again.  We have gotten wonderful results in the past.  Our God is SO good!  We welcome anyone who wants to join us.

I scheduled his follow up swallow study for next month.  I'd like to ask for prayer for this as well.  The last swallow study showed that food and liquid pooled at the back of his throat, putting him at risk for aspiration.  That is the reason he has the G-tube.  We are hoping that the study will show that he can swallow successfully.  I'm excited to start giving him small snacks and teaching him that food is yummy!


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