Wednesday, September 18, 2013

Surgery Update

The surgery went very well!  It has been extremely difficult for him, though.  The first several hours were okay, but once night fell he was in a lot of pain.  After a lot of trial and error, they doubled his dose of morphine, which quickly made him feel much better and he was finally able to sleep. 

He has a lot of secretions in his nose and throat due to the surgery and not wanting to swallow, and the more he cried the more was produced.  The poor little guy had dried yuckies pasted to his cheek this morning.  Michelle gave him a nice bath and cuddled him while Lynda changed his bed, and he's been sleeping well since.  The GI doctor suggested trying diastat (Valium) to help him relax and sleep.  It's also used as a seizure recovery drug.  We have some at home but have never had to use it.  I'm trying to prevent him from escalating into full pain mode, so once he started moving around and seeming uncomfortable we gave him a dose.  He can still have Morphine as needed.

Due to the high fat in the Ketogenic diet, there are certain side effects that can occur. Our dietitian, Jamie, ran a lipid panel, and thankfully his cholesterol still looks good.  Kidney stones are also a somewhat common side effect.  The last urine test they ran was high for whatever it was they were testing (I just can't keep everything straight at this point) so Jamie is suggesting an ultrasound of the kidneys to be sure that he doesn't have stones.

Please continue to keep him in your prayers.  It's rough going right now, but this surgery has the potential to make his life better in several areas.  Let's pray that it does!

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