Thursday, June 16, 2011

EEG Results

When we did the EEG last week, I knew that the clusters of eye movement/arms lifted up were seizures, but also had some concerns about other movement Levi was experiencing.  The EEG showed that those other movements are not seizures, so that is very good news!  The clusters are Infantile Spasm seizures, which we had already known.  We had done some research on this type of seizure, and some of the information we read was very scary.  I spoke to the neurologist about what I had read, and thank God, she was able to put my mind at ease.  She said that although these are dangerous seizures in that they can cause brain damage, and can be difficult to bring under control, the biggest risk would come into play on down the line if they are not controlled.  That is the reason they use such aggressive treatments in the beginning.  So we have gone up again on the Topamax, to 60mg in the morning and 60mg in the evening.  We have plenty more room to increase if needed, but they want him to be on the least amount of medicine as possible, which is why we are increasing at a slow rate.  The seizures have not stopped, but we do notice a decrease.  Hopefully soon they will stop altogether! This is yet another praise report that I attribute to fasting and prayer.  Since we began the fast 16 days ago all we have had is good news!  Praise God!

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