Monday, October 22, 2012

Waiting Around to Wait

Well the biopsy will not be done today.  Hopefully we find out today when it will be done, though.  So we are waiting for the biopsy, then will wait a minimum of 3 days for the biopsy results.  If that comes back negative I guess we will continue with continuous feeds and wait to see if his bowels start working on their own.

The dietitian raised his calories slightly because he has lost so much weight.  When we came in here two weeks ago, he weighed 18 pounds 9 ounces.  Last week he weighed in at 17 lbs 1 oz.  The sad thing is that he had been doing so very well on the ng tube before the surgery, he was looking pudgy and had grown up to 20 1/2 pounds.  That's a lot of weight for a little guy to lose!

He woke up crying this morning and has been crabby ever since.  His belly is largely distended again, so they will be placing a rectal tube today to drain the gas and stool.  It's been four days since this was last done.  I can't imagine how awful his tummy must feel.

Please keep the prayers coming.  My frustration is growing, and although I'm trying to be positive I'm finding it more and more difficult.  Thanks!


No comments:

Post a Comment